Cross posted from my law blog and first posted as a comment to an article by my wife, Crane-Station, that she posted atFiredoglake-MyFDL.
I am an only child and, even though I had an unpleasant childhood for a variety of reasons that are not relevant to this post, I still loved them and when their health foundered, I did the best I could to ameliorate their suffering.
My dad succumbed to Alzheimer’s and my mother had a stroke after she returned home from dropping him off in the locked Alzheimer’s Unit of a nursing home. She laid on the floor in the garage for 7 days before a neighbor found her. She only partially recovered her mental faculties.
He lived another six years and she lived another seven.
I was living in Seattle at the time and when I got the news from an officer with the Fire & Rescue Department, I got on the first available flight to Myrtle Beach, SC.
He did not know where my father was and I did not find out until I arrived at the hospital and, in one of her lucid moments, my mother told me what she had done.
I knew his forgetfulness had been getting worse, but I did not know how bad it had gotten. We did not talk much because of the poisoned past. She told me that he slapped her and shoved her to the floor after she criticized him for forgetting something she regarded as important.
That was the first and only time that he hit her in their 50+ year marriage and it would be the last time. She dropped him off at the Alzheimer’s Unit later that day.
I went to see him. It was like a jail and I had to be admitted to the unit by a security guard, who unlocked the heavy steel door and admitted me to a large hellish visiting area.
Many patients wearing soiled clothes were strapped in wheelchairs. Unable to hold their heads erect and focus on a blaring television set in a corner of the room, their heads lolled from side to side as drool dripped from their mouths and unintelligible sounds emitted from their throats. The place smelled like shit.
I saw my father at the opposite end of the room talking to an unresponsive man about something. I walked up to him not knowing what to say. He noticed me approaching. He stopped in mid-sentence and faced me.
He smiled in recognition and relief. He said, “Frank, thank God you’re here. Let’s get out of here.” He put his arms around me and hugged me tight. When he let me go and stepped back still holding my hands, I saw that his eyes were moist with tears.
My name isn’t Frank. Frank was his older brother and he died 26 years ago.
My father did not know he had a son.
We chatted for awhile as I tried to fit into the conversation. I don’t recall what I said, what we talked about, or how long we talked. I remember being overwhelmed by the horror of the place and the stranger whom I used to call “Dad.”
Suddenly, I couldn’t take another minute. I released his hands and said, “I have to go the bathroom. I’ll be right back.”
I turned and walked away. I spotted the security guard and struggled to keep from running toward him and the door over which he presided.
“Let me out,” I said. “I can’t take it anymore.”
He laughed and said, “You’ll get used to it after awhile.”
I never did.
I did, however, arrange to place my mother and my father in the nursing unit of a retirement home that was a much better facility and I visited them as often as I could over the next several years as inch-by-stubborn inch they declined and briefly rallied, declined and briefly rallied, until they were no more.
My father never spoke my name and never knew who I was.
My mother criticized him for it, but he soon forgot who she was and spent the last year of his life strapped into a bed that they used to transport him back and forth between his room and the day-room.
Sometimes they left him in the hall across from the nursing station so they could keep an eye on him as they came and went.
They called me one day and told me that he died peacefully.
I buried him and then I went home.
I was there a year later when my mother passed.
I held her in my arms and kissed her goodbye when she stopped breathing.
I buried her and then I went home.



24 Comments

Thanks for this, Mason. It must have hurt to write it, but it would have hurt more not to write it,
My dear friend:
My arm is around your shoulder as I say that we both lost our fathers due to the same terrible illness.
And the loss of your mother leaves me screaming to the universe about the inequities of our human travails.
May peace be your constant companion and may love open the door to your heart for the very best that life has to offer you and C-S.
Stan
Even if Obama’s POS Health Insurance Co., Giveaway Act survives SCOTUS review, the long term healthcare provision has been dropped, so there will be no financial assistance from the government to pay for nursing care for people suffering from Alzheimer’s and Dementia.
My parents did not have long term health insurance.
I recall the monthly bill for nursing care, excluding doctor visits and pharmaceuticals, was $5,000 per parent. The total monthly cost for both parents from the mid-nineties to the early 2000s was approximately $11,000 per month.
I do not doubt that the cost today is substantially higher.
What will happen to us, if we are stricken by these horrific diseases?
Many people believe locked wards, restraints, pepper spray and tasers are the just rewards of the unfortunate.
I do not know my country anymore.
Thanks, Stan.
We did what we had to do.
We’d do it again, if we had to.
How odd it is to be caring for parents whom I resented and with whom I fought for much of my life.
I do not blame God for what happened to my parents and I do not blame my parents for the financial devastation wrought by their long term care. I do not blame anyone for what happened.
It happened just as it will continue to happen to thousands upon thousands of families and we, as a society, have a duty, I believe, to share the financial burden of caring for our long term incapacitated elderly.
Single payer health care is the only answer.
How we respond to this immense problem will define us as a society and we are headed in the wrong direction.
Blessings my friend. Many blessings.
Namaste
Thanks, PW.
Yeah, it wasn’t easy, but once I started, the story poured out of me as though I had written it long ago.
Small wonder that Alzheimer’s/Dementia is often known as ‘the long goodbye’. The folks around here who can’t afford care facilities are many, and the angst they experience watching their loved ones become wraiths sounds terrible. One neighbor nursing her great blacksmith of a husband described her frustration and weariness resulting in something akin to abuse; I think I understood how that could happen.
My parents died at 47 and 48; while I missed them, and still do, at least they were spared this sort of end.
Feeding and diapering a loved one long term as you would a child must take some sort of compartmentalization I can only imagine.
Can’t believe your mum survived for seven days,and ever regained any faculties; whoosh.
My partner and I used to go to nursing homes to play now and again; I couldn’t bear the locked AD wings after the first time.
Thanks, Mason. Love to you.
We are indeed brothers in our struggle to liberate the human soul and spirit from the tenacious clutches of the criminals who run this farce of a democracy.
The sooner this decaying national edifice of sadistic greed and corruption sinks into the shifting sands of eternal oblivion the sooner the world can recover from this soul wrenching nightmare of American predatory capitalism.
Rise up my fellow citizens.
We have only our shackles to lose.
Thanks, Wendy.
I can only echo what PW said @1.
Namaste.
Gracias.
I don’t know the “back story” here and I don’t need to. My mother had senile dementia, and while she knew my sister and me, she sometimes got her granddaughters mixed up in her mind with we, her daughters, as children.
I think she loved us in her way, but she was always critical and belittling, and by the time I was an adult I neither loved nor liked her. We were always her “dumb little daughters” even after our father was gone and we looked after her care and her finances for several years. I did not shed a tear at her death.
My relationship with my adult children is much different, and although we have our differences, we have a loving relationship. Your story is heartbreaking, and in some small way, I understand and empathize.
Thanks for sharing your story.
You did well to break the cycle of abuse because it is extremely abusive to call your children dumb.
Many people internalize abusive descriptions like “dumb” with which their parents repeatedly imprison them and they never break free.
Often the parent is repeating what their parent did to them, but sometimes there is an uncontrollable sadistic desire to wound.
Coming to a point in life where you drop all of your expectations and see a parent as a flawed human being who also happened, through no fault of your own, to be your parent can be liberating.
Our parents test us, but not in any way that they would have imagined.
Nevertheless, I still wonder from time to time what it would have been like to experience unconditional love instead of growing up in an abusive environment where every day was yet another screaming match that all too often ended with the smack of leather on flesh.
Thank you, Mason
Almost a year ago on Mother’s Day my Mother passed away. Fortunately the locked and secure wing, the Alzheimer’s wing of the local facility is full of compassionate and caring people. Fortunately my father was spared old age complications, so to speak, dying over a decade earlier from inoperable brain cancer due to work exposure during over three decades of work in the petroleum distribution industry. I regularly still visit the people living in the facility with a pet as these people were the ones around in my town, in my youth.
People there respond, people there are still important. People there are grateful for having the facility they did not have when their parents were old.
Though I was told that dementia was the cause of my Mother’s demise, I know that it was, at the very end for her, a conscious choice in leaving us. She was lonely, she had had enough of this life. She was confident she had brought up her children properly. She accepted with great courage, her moment. I was given the opportunity to be there and softly sing to her, in her passing. Thanks so much for the touching diary.
In all the political hub-bub it is easy to sometimes forget real life.
Fortunately there was no violence in our home, just a lot of yelling. Even though they stayed together for life, I don’t think there was much love between my parents. Most of the yelling, arguing, etc. was between them. It is difficult to explain to my children why I didn’t like my mother.
…and she never called us “dumb” in so many words, but it was implied frequently.
I’m not asking for a response and don’t feel like you have to provide one because it isn’t any of our business, but it sure sounds to me like alcohol and stress were big factors in your parent’s marriage.
This diary makes the argument for physician assisted suicide well.
It’s truly telling about the U.S. culture regards what is not talked about and that which is talked about. Death being one example.
Dementia being another. Talk about almost anything to avoid the reality of being alive.
And as someone who was abused physically and mentally as a child and estranged from both both parents as a result, I think I understand some of the commenters well. But the more I understood their -my bio parents- upbringing and the environments they experienced, the easier it became to forgive them.
“then I went home.” ; hope this says to you something comforting. Solsbury Hill is located near Bath, England, where Gabriel would often walk or jog. According to legend, a temple was built there to honor Apollo, god of light, music, and poetry. Solsbury Hill was the focus of a long and bitter dispute in the 1990s between environmentalists and government concerning the construction of a 4 lane road which cuts deeply into the side of the hill.
The MOTU will not allow Universal Health Care because it doesn’t continue the stripping of resources from the middle class. If they can’t own you through student loan debt then they will own you by guaranteeing that you have no inheritance.
my mother also cut me down growing up and i hated her. and, once my father died i took excellent care of her. i was a very attentive daughter for the three years she lived after my father died. i was thrilled when she died and i didn’t have to deal with her anymore.
on the other hand, when my father died, i was holding his hand and simultaneously praying for him to take just one more breath and for him to be released from his struggle to breathe. it’s been 11 years since he passed. i still miss him enormously.
Thank you for sharing your story.
That you would return with a pet to visit others after her death speaks volumes about your caring nature.
Yes, I have no doubt that you are right.
Even after all of the violence, mayhem and death that I’ve witnessed during my 30 years as a criminal defense lawyer, many of them spent handling homicide and death penalty cases, I’m still struck nearly dumb by the ravenous, heartless and soulless greed of the MOTU.
They must be psychopaths. How else could they celebrate causing such widespread human suffering and destruction by rewarding themselves with multi-million-dollar bonuses while publicly complaining and whining, as Jamie Dimon often does, that they don’t get enough respect.
The stress of constantly battling to protect my soul and sanity from my incredibly sadistic and volatile mother caused me to suffer many illnesses and I did not realize that I was blessed with a healthy body until my stress level gradually died down to a manageable level several years after I moved to Seattle, which was as far away as I could get from her without moving to Alaska (too cold) or Hawaii (no jobs).
She not only abused me psychologically and emotionally, she abused me physically and sexually. My dad professed to not understand why I argued with her and did not treat her more lovingly. He hit me when I argued with her.
I literally cannot recall a happy moment when I was a child.
But all that is ancient history now and I would support them again, if the opportunity arose.
I don’t know why, but I still love them and the bitterness is gone.
Go figure.
Needless to say, I am not a big fan of biological families and I do not understand the right when they glorify the family and talk about family values as if that were a good thing.
If your #16 was directed to me, no alcohol. My parents were infrequent social drinkers, nothing more. There may have been stress caused by many things, possibly including money, but perhaps more by simple incompatibility. They “had” to get married…I came along at about 7 months.
Who knows? They’ve been gone for many years (I am 69 and was a later-in-life baby). I’ve long gotten over it. Many people have much worse childhoods than mine.
My grandmother asked me to kill her. I couldn’t…..